The PReS Global Musculoskeletal (MSK) Health Working Party was created with the aim to enable greater engagement and participation within our global paediatric rheumatology community and increase the collaborative networks already established of health professionals and investigators from different remote geographic areas of the world in order to optimize research opportunities with funding for global health topics. The key themes of the working party are awareness raising and advocacy, policy suggestions, education and training, workforce capacity, clinical care, and research to improve MSK health for children and young people globally.
General Aims
- To serve as a platform to enable collaborative projects, researcher development and support grant applications
- Work closely with all Working Parties and Health Professionals of PReS (HP-PReS) Committee, Network for Children with Arthritis (ENCA), and EMERGE
- Work closely with the PReS Global Research Task Force and with the education and clinical affairs pillars of the other Working Parties for combined actions.
- To increase collaborations with paediatric orthopaedic and paediatric MSK allied health professionals and networks around the world
Aims per pillar
Research pillar:
· To focus on research to improve MSK health for children and young people globally and optimize research opportunities with funding for global health topics
Education pillar:
To promote a broad range of educational activities closely aligned to PMM to reach wider audiences, especially those in low-resource settings.
Clinical affairs pillar:
- To raise awareness, policy suggestions, and promote the workforce and clinical care capacity.
Core team composition:
- Chair: Claudia Saad-Magalhães, UNESP- Sao Paulo State University (Brazil)
- Secretary: Filipa Oliveira Ramos, Paediatric Rheumatology Unit, Centro Hospitalar Universitário Lisboa Norte, Universidade de Lisboa (Portugal)
- Research pillar leads: Brian Feldman, Rheumatology Department, Hospital for Sick Children (SickKids), Toronto (Canada) and Laura Lewandowski, National Institute of Arthritis and Musculoskeletal and Skin Diseases, NIH (USA)
- Clinical affairs pillar leads: Yosef Uziel, Pediatric Rheumatology Unit, Meir Medical Center, Kfar-Saba (Israel), Mehmet Yildiz (Turkey) and Anand Rao (India)
- Education/training pillar lead: Giorgia Martini, Pediatric Rheumatology Unit, Department of Woman and Child Health, University of Padova(Italy)
- EMERGE representative: Karla Vanessa (Nicaragua), Jessica Perfetto (USA) and Yulia Vyzhga (Ukraine)
- Allied Health Professional Representative: position open for applications
- Parent/patient representative: Luciana Peixoto (Brasil)
Planned Activities:
- PRES Basic Course in Pediatric Rheumatology in Monterrey – Mexico in 2024-2025.
- Awareness activities by replicating the message of the Word day across countries on March 18th and during the month of March 2024.
- Collaboration with other working parties in the following research proposals:
- JIA WP - Validation of JADAS for adults with JIA
- Vaccination WP - survey about vaccination coverage and practices for pediatric rheumatic diseases within the global communities, in particular in low resourced settings more populated countries
- EMERGE - worldwide survey for pediatric rheumatology unmet needs
Contacts:
Chair: Claudia Saad-Magalhães - claudia.saad@unesp.br
Secretary Filipa Oliveira Ramos - filipa.o.ramos@gmail.com
