PRESTAR
Early in 2025, PReS launched PReSTaR (PReS Network for Trials and Research), a new initiative that aims to enhance our community's research and development capabilities.
PReSTaR is designed to foster and support clinical research in pediatric rheumatology through a network involving clinical and academic centers, as well as PReS working parties and national scientific societies.
The core activities of PReSTeR will include establishing and maintaining clinical databases to support prospective disease registries with associated biobanks as well as conducting investigator-initiated and sponsored clinical trials.
A kick-off meeting was held in Genova in March 2025 with 48 participants, including working party leadership, PReS council members and external guests.
The governing bodies of PReSTaR will be a Board of Trustees and a Scientific Committee.
Board of Trustees
The Board of Trustees will play a crucial role in overseeing the strategic direction and governance of PReSTaR and its responsibilities include:
- Providing strategic guidance and oversight.
- Ensuring the initiative aligns with the goals and mission of PReS.
- Approving major decisions and initiatives related to PReSTaR.
|
Board of Trustees |
Nominated by |
Duration of Term |
Name |
|
Gaslini Representative |
Gaslini |
4 years |
Valeria Antenucci |
|
Liaison Officer |
Gaslini |
4 years |
Angelo Ravelli |
|
PReS Executive Rep |
PReS Council |
According to Election Term |
Tadej Avcin |
|
PReS Treasurer |
PReS Council |
According to Election Term |
Petra Hissink Muller |
|
Scientific Committee Chair |
PReS Council |
2 plus 2 years without right to vote |
Fabrizio de Benedetti |
Scientific Committee
The Scientific Committee has the task of identifying and proposing research projects and clinical trials. This committee includes leading researchers and clinicians who bring their expertise to guide the initiative's research agenda. Their responsibilities are:
- Reviewing and approving research proposals.
- Ensuring the scientific rigor and quality of research projects.
- Providing mentorship and support to researchers involved in PReSTaR.
|
Scientific Committee |
Nominated by |
Duration of Term |
Name |
|
Chair |
PReS Council |
2 + 2 years |
Fabrizio De Benedetti |
|
PReS Exec Rep |
PReS Election |
According to election term |
Seza Ozen |
|
PReS Research Chair |
PReS Election |
According to election term |
Alexandre Belot |
|
PReS Clinical Affairs Chair |
PReS Election |
According to election term |
Joost Swart |
|
PReS HP Chair |
PReS Election |
According to election term |
Polly Livermore |
|
Gaslini Rep |
Gaslini |
2 +2 years |
Marco Gattorno |
|
Patient Rep |
PReS Council |
2 +2 years |
Michael Poeltz |
|
Expert in Clinical Trials/Registries |
PReS Council |
2 +2 years |
Athimalaipet Ramanan |
|
Expert in Clinical Trials/Registries |
PReS Council |
2 +2 years |
Veronique Hentgen |
|
Expert in Clinical Trials/Registries |
PReS Council |
2 +2 years |
Eve Smith |
More information about PRESTAR and its set up will be relayed to you over the coming months on the PRES website (www.PRES.eu.) A separate PRESTAR website is also being created and will be launched in due course (www.pres-tar.org/home.html).
PReSTAR Grant
A new PReSTAR grant will be made available, with funding from PReS and supported by the PReSTAR Team. These grants will support projects that align with the goals of PReS and PReSTAR and contribute to the advancement of our community. More information will be made available on the PReS and PReSTAR websites.
We believe that PReSTAR will be a major benefit to our community and are looking forward to your active participation and support in making it a success with the final aim of improving the lives of children and young people with rheumatic diseases
