Here below you will find a collection of links recommended by PReS, on the topics Education, Diseases, Patients and Parents Organizations, Journals and Professional Organizations.
If you have other recommendations or find any broken links, please send an e-mail to email@example.com .
European Academy of Paediatrics - COVID-19 Resource center
The "Single Hub and Access point for paediatric Rheumatology in Europe"(SHARE) is a European project whose main objective is to improve the quality of care of patients suffering from Paediatric Rheumatic Diseases.
The Paediatric Rheumatology INternational Trials Organisation (PRINTO) is a not for profit, non governmental, international research network founded by Alberto Martini and Nicolino Ruperto in 1996, and initially included 14 European countries (now more than 50 and more than 350 centres worldwide), with the goal to foster, facilitate and co-ordinate the development, conduct, analysis, and reporting of multi-centres, international clinical trials and/or outcome standardisation studies in children with paediatric rheumatic diseases (PRD).
UNION EUROPÉENNE DES MÉDECINS SPÉCIALISTES – U.E.M.S.
EUROPEAN UNION OF MEDICAL SPECIALISTS
Pediatric section of UEMS
Paediatric Musculoskeletal Matters (PMM) - an open and free resource - recommended for PReS members to use in their teaching of medical students, paediatricians, family doctors and allied health professionals. PMM content includes clinical skills (pGALS, pREMS, with videos), common clinical presentations, 'red flags' (when to be concerned and refer for specialist advice) and essential knowledge about management of rheumatic disease. PMM was developed by Professor Helen Foster and colleagues at Newcastle University, UK, with additional contributions from paediatric rheumatologists around the world to reflect variation in clinical practice. PMM-nursing (launch September 2017) targets all nurses and students working with children and young people and was developed with nurse educators and nurse specialists.
The pGALS app – an open and free resource - recommended for PReS members to use in teaching of medical students, paediatricians, family doctors and allied health professionals. Translations of pGALS into several languages have been provided by PReS members. The pGALS app was developed by Professor Helen Foster and colleagues at Newcastle University, UK.
pGALS App Available to download: Google Play and Apple Store
'European Musculoskeletal Review and European Paediatrics' journals
The NOMID/CINCA Website
Hyper-IgD and periodic fever syndrome
Maladie de Behçet
Juvenile systemic scleroderma
The Rheumatoid Arthritis Support Network (RASN)
Patients and Parents Organizations:
Printo/PRES parents web site
ENCA - European Network for Children with Arthritis
Pediatric Rheumatology Journal
Annals of Paediatric Rheumatology
Arthritis and Rheumatism
Arthritis Care and Research
Clinical and Exprimental Rheumatology
Current Opinion in Rheumatology
Journal of Autoimmunity
Journal of Rheumatology
Scandinavian Journal of Rheumatology
Zeitschrift für Rheumatologie
ACR - The American College of Rheumatology (ACR)
AFLAR: The African League against Rheumatism:
APLAR: The Asia Pacific League of Associations for Rheumatology:
British Society for Rheumatology
British Society for Paediatric and Adolescent Rheumatology
British Health Professionals in Rheumatology
Dutch Rheumatology Association (Nederlandse Vereniging voor Reumatologie, NVR (in Dutch)
European League Against Rheumatism
FAVOR: FMF Arthritis Vasculitis and Orphan disease Research in Paediatric Rheumatology
German Society for Paediatric Rheumatology
Greek Rheumatology Society
Indian Pediatric Rheumatology Society
International League of Rheumatology Associations
International Society of Autoinflammatory diseases
Irish Society for Rheumatology
Österreichische Gesellschaft für Rheumatologie
PANLAR: Pan American League of Associations for Rheumatology:
Societe Francaise de Rhumatologie (in French)
Società Italiana di Reumatologia
Sociedad Portuguesa de Reumatologia
Spanish Society for Rheumatology (in Spanish)
Swedish Society for Rheumatology (in Swedish)