To promote international collaboration among researchers, clinicians, allied health professionals, JIA patients and their families to increase knowledge and improve research in juvenile idiopathic arthritis (JIA)
To serve as a platform for collaborative research projects development and grant request
Apply the PReS 3-pillar structure to JIA. In the first few years of the JIA WP activity, this will have particular focus on non-systemic JIA and outcome assessment.
Work closely with:
PReS MAS/sJIA WP
PReS Imaging WP
PReS Uveitis WP
Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN)
Outcome Measures in Rheumatology (OMERACT) JIA Working Group
Health Professionals of PReS (HP-PReS) Committee
European Network for Children with Arthritis (ENCA)
EMERGE
Thecomposition (until election at first WP meeting)
Chair:
Alessandro Consolaro, MD PhD Associate Professor of Pediatrics, Istituto Giannina Gaslini and University of Genova, Genova Italy.
Secretary:
Veronika Rypdal MD PhD, postdoctoral researcher, Dep. of pediatrics, University Hospital of North Norway, Tromsø, Norway
Representative for research pillar:
Joost F. Swart MD PhD, Wilhelmina Children’s Hospital, University Medical Center, Utrecht, Netherlands
Representative for Education pillar:
Jeannette Cappon, DPT, Reade, Centre for Rehabilitation and Rheumatology, Dutch Health Professionals in Paediatric Rheumatology (NHPKR), Amsterdam, The Netherlands
Representative for Clinical Affairs pillar:
Flora McErlane MbCHB MRCPCH MSc, Greath North Children’s, Newcastle Hospitals NHS Foundation Trust, Newcastle, UK
Plannedprojects
Development of recommendations on physical activity in JIA
Development of guidelines for scoring the Physician Global Assessment (PGA) in clinical trials and routine practice, in collaboration with PR-COIN (application to PRINTO-PReS grant)
