To promote international collaboration among researchers, clinicians, allied health professionals, JIA patients and their families to increase knowledge and improve research in juvenile idiopathic arthritis (JIA)
To serve as a platform for collaborative research projects development and grant request
Apply the PReS 3-pillar structure to JIA. In the first few years of the JIA WP activity, this will have particular focus on non-systemic JIA and outcome assessment.
Work closely with:
PReS MAS/sJIA WP
PReS Imaging WP
PReS Uveitis WP
Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN)
Outcome Measures in Rheumatology (OMERACT) JIA Working Group
Health Professionals of PReS (HP-PReS) Committee
European Network for Children with Arthritis (ENCA)
EMERGE
Chair:
Veronika Rypdal MD PhD
Consultant, Department of Pediatrics, University Hospital of North Norway, Tromsø, Norway Associate professor, UiT - The Arctic University of North Norway, Tromsø, Norway (Elected November 2025) Contacts Chair: Veronika Rypdal: Veronika.rypdal@unn.no
Secretary:
Filipa Oliveira Ramos, MD, PhD
Paediatric Rheumatologist, Paediatric Rheumatology Unit,Paediatric and Rheumatology Department, University Hospital Santa Maria, School of Medicine, University of Lisbon, Lisbon, Portugal
Representative for research:
Klaus Tenbrock Prof. Dr. med, Department of Pediatrics, Translational Pediatric Rheumatology and Immunology, RWTH Aachen University, Aachen, Germany Pediatric Rheumatology, Inselspital, University of Bern, Switzerland
Filipa Oliveira Ramos, MD, PhD. Head of Pediatric Rheumatology Unit, Rheumatology and Pediatric Department, University Hospital Santa Maria, Lisboa Professor of Rheumatology and Pediatrics, Faculdade de Medicina, Universidade de Lisboa, Portugal.
Representative for Clinical Affairs:
Flora McErlane, MD
Consultant Paediatric Rheumatologist, Paediatric Rheumatology, Great North Children's Hospital, Newcastle Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK. Institute of Population and Health Sciences, Medical School, Newcastle University, Newcastle upon Tyne, UK.
EMERGE representative:
Silvia Maria Orsi, PhD student
Pediatric Rheumatology Unit, Istituto Giannina Gaslini and University of Genova, Genova, Italy.
AHP representative:
Daniela Ghio, PhD, CPsychol. Division of Psychology & Mental Health, School of Health Science, Faculty of Biology, Medicine and Health, University of Manchester, Oxford Road, Manchester, UK.
Patient/parent representatives:
Christophe Normand. MCI Secretariat, European Network for Children with Arthritis (ENCA), Geneva, Switzerland.
Plannedprojects
Educational
• PReS Joint Injection Course at PReS Congress in Belgrade, Serbia Monday, 14 September 2026 Tuesday, 15 September 2026
• PReS School - advanced webinar, July 2026
Clinical
• PReSTaR website for patients and families Research
• Development of PReS Recommendations for theManagement of Non-Systemic JIA
• Refractory Non-Systemic JIA: Consensus-Based Definition and an International Prospective Cohort Study
• Defining Flare in Non-Systemic JIA
