The Health Professionals of PReS (HP-PReS) Committee hosts all health professions that participate in the clinical care of and research for children with rheumatic diseases; for example nurses, nurse practioners, occupational therapists, physiotherapists, psychologists, social workers, physiatrists, sport scientists and podiatrists.
HP-PReS participants seek the best possible, evidence based, approach to treat the physical and psychosocial consequences of a rheumatic disease in childhood and support patient and parents in dealing with these consequences in daily life.
Re-launch of HP Community of Practice and Science
HP- PReS aims to develop towards 2025 a dedicated Community of Practice and Science where HP exchange knowledge and skills and find resources in order to achieve the highest standards of care for all HP- disciplines, in line with the mission of PReS 2025: “Advance the care and improve the health and well-being of children and young people with rheumatic conditions”. HP PReS calls for dedicated colleagues, willing to contribute to a European and global platform to improve the care leading to better outcomes for the children and their families.
The HP community is expanding its activities by exploring new ways of collaboration with the PReS Research, Educational and Clinical affairs Committees, the working parties of PReS, the patient association ENCA and the EULAR HPR.
On 23rd September 2020 11:15 during the kick off meeting on the E-congress, this new Community has been re-launched in the presence of over 40 persons. This meeting is recorded and can be seen on the e-congres platform until 26th December 2020. In 2 short videos ( PResExplained.mov) you can learn about the structure of PReS and the connections of the HP in this structure. On 25th September in the HP/ENCA in a workshop on pain and fatigue management the launch of a working party on this topic is announced.
The aim for next year is to shape the direction of the HP Community by mixing and merging the participants in subgroups to explore the needs and opinions and give advice and propose plans to the PReS Council.
The HP Community will organise regular ZOOM meetings where you as a PReS HP Members or aspiring PReS members (with an intention to become member in 2021) meet and discuss in plenary and monodisciplinary subgroups. These are called “ComPaS meetings”( Community of Practice and Science).
Two multidisciplinary study groups around 2 themes (Pain and Fatigue management and Physical fitness/ Physical activity) will take off.
HP’s will join ideally all PReS Working Parties (JDM, SLE in the first step).
Launch a HP Congress Committee 2021 of 4 members (HP chair and 4 discipline representatives)- ComPaS meeting
Discipline groups give input for the development of HP PReS clinical, educational and research affairs
Do you want to join this PReS Health Professional Community and connect with colleagues?
You are welcome in the ZOOM ComPaS meetings and have a seat in the network where activities and themes for the future are discussed.
In advance you have to fill in a survey where you can introduce yourself to the community and express your interest in the groups. You than will receive a ZOOM invitation. This form can also serve as an English CV when you decide to become a PReS member. ( more information ) You can use my name to support your membership registration.
Chair Health Professionals in the PReS Council
Amsterdam, The Netherlands
For questions and suggestions: firstname.lastname@example.org