Newsletter

News from the Health Professionals ComPaS - Community of Practice and Science – July 2021

Dear colleagues!

  • Give input for courses to develop by filling in a survey
  • 3 presentations to watch on the PReS Member website
  • An inspiring e-congress event coming up

What Educational needs do HP you have? Fill in the survey!

You are invited to fill in a survey initiated by the Educational Subcommittee of the EULAR HP in Rheumatology, in collaboration with the HP Chair of PRES. Providing education is difficult for health professionals in rheumatology (HPRs) as non-medical HPs include different professions (nurses, occupational therapists, physical therapists, and others), with different needs regarding content and level of education (within and between countries in Europe). To design courses, it is important to have information on the motivations and needs regarding education for HPRs working in rheumatology across Europe, and especially HP in ped rheumatology are also invited to fill in this survey. The whole survey will take you approximately 20 minutes to complete.

(Link: https://www.soscisurvey.de/HPR_edu_needs/)

HP PReS ComPaS Meetings

Since 2020 PReS organize ZOOM meetings for the HP Community of Practice and Science. These meetings are called: ComPaS Meetings, indicating that they are meant to discuss the direction for the re-launched HP community.

In the ComPaS meeting of Tuesday 20th April we welcomed 2 speakers:

1) Susmita Kashikar-Zuck,

Professor of Pediatrics and Clinical Anesthesiology Cincinnati Children’s Hospital Medical Center and Chair Pain Committee(CARRA)

She presented a successful Integrated Cognitive-Behavioural Therapy and Neuromuscular Training for Juvenile Fibromyalgia: The FIT Teens Program.

 

2) Karine Toupin-April, OT, PHD, Associate professor University of Ottawa

Development and Acceptability of a Patient Decision Aid for Pain Management in Juvenile Idiopathic Arthritis: The JIA Option Map

The presentations are recorded and available for PReS Members on the website

 

Theme group meetings

HP colleagues who actively want to connect are welcome in 2 theme groups "Pain and Fatigue management" or "Physical activity and fitness.  In the first ZOOM meetings of HP PreS Interest group (nov/may/june 2020/2021) we discussed the wish and process for developing recommendations for Physical Activity for children with JIA. As a starting point we read the EULAR recommendations for physical activity in people with inflammatory arthritis and osteoarthritis (Anne-Kathrin Rausch Osthoff). EULAR prescribes a standard procedure to develop recommendations which is beyond the actual scope of the meetings of the HP PReS group. As an exercise we decided to study these EULAR recommendations and discuss the adaptability and after that the feasibility for children with JIA. The aim is to exchange opinions during interactive sessions. Besides that, to explore what points of differences there are between adults and children PA recommendations. Finally, we have a wish to develop recommendations for PA in children with JIA with an acceptable level of agreement among HP. 

For inspirational reasons on developing recommendations, we welcomed Dr. Helene Alexanderson, Associate Professor from the Karolinski Institute Stockholm, Department of Neurobiology, Care Science and Society She presented the

" The process of developing recommendations in PA in JDM/ Myositis in the IMACS group”. This presentation is recorded and available on the PReS website for members

 

E-congress HP Program: Kick off meeting pre-conference Sunday morning

The HP sessions integrated in the PReS e-congress are promising.

Topics will be: Auto-inflammatory diseases and the implications for HP management, Coping with additional issues beside the disease, Barriers of Physical activity, Measurements for Physical fitness in clinical practice and a session on Hypermobility Spectrum Disorder.

Although no face-to-face meeting, we will have several life virtual network events, like life Questions and Answers and informal fun events.

Best regards,

 

Jeannette Cappon,

HP Chair PReS Council

Ped PT-Msc Reade, Amsterdam Netherlands

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