Please complete the survey to help myositis research!
Date: 28.04.2021
Exercise and Rehabilitation are important components in the treatment of Juvenile Myositis and Dermatomyositis (JDM). We need more research in this area!
Please complete this survey before end of May.
CARRA, PReS, and JDM families are developing a new work group for this. We are working to develop study questions that are useful and interesting for those involved in the care of JDM, including patients and caregivers.
This work is focused on pediatric patients and plans to complement ongoing work of the IMACS Exercise Scientific Interest Group (IMACS link).
With this survey we hope to:
1. Gauge interest in these possible future studies
2. Identify additional members interested in collaborating in this future work
3. Elicit additional feedback and ideas
Participation in this survey is optional and voluntary. We expect it will take less than 5 minutes to complete. Completing this survey will enter you into a raffle to win a 20$ gift card!
We look forward to your responses!
Brian Feldman, Kristin Houghton, Susan Kim, Sue Maillard, Liza McCann, Kristine Risum, Helga Sanner, Kristin Schjander Berntsen, Alysha Taxter and JDM families.
