Congratulations to the First CARRA-PReS Collaborative Research Award Recipients!
Congratulations to Co-PI’s Rebecca Sadun (Duke University), Eve Smith (University of Liverpool), Jennifer Cooper (University of Colorado), and Alexandre Belot (University Lyon I) who were selected as the inaugural recipients of the CARRA-PReS Collaborative Research award for their project entitled, Identifying Cross-Registry Commonalities to Facilitate International Pediatric Lupus Research.
Childhood-onset lupus (cSLE) affects a quarter million people worldwide. Lupus registries, which contain patient information and samples, are a powerful way of studying how lupus affects children, predict disease severity, and identify the most effective treatment strategies. CARRA has a North American registry, the UK has a national registry, and nine other European countries use a third cSLE registry, each of which has a slightly different approach to collecting patient reported outcomes, clinical data, and blood/urine samples. The goal of this proposal is to see where the registries are aligned and where they can be better aligned to facilitate research across all three registries. Such research will be much more powerful than research in any single registry. In addition, this project will bring together international lupus researchers and patients/parents from Europe and North America to lay a strong foundation for cSLE research projects worldwide.
The goal of the CARRA-PReS Collaborative Research Award is to support collaborative research activities between CARRA and PReS early career investigators. Learn more about CARRA here. CARRA and PRES will be accepting grant applications for this funding mechanism again this fall. Stay tuned for more details!