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PRES / PRINTO /SHARE/ EULAR/ACR  RECOMMENDATIONS

March 2019 - Consensus-based recommendations for the management of juvenile localised scleroderma

 

Evidence Based Recommendations for Genetic Diagnosis of Familial Mediterranean Fever
Giancane G, Ter Haar N M, Wulffraat N, Vastert S, Barron K, Hentgen V, Kallinich T, Ozdogan H, Anton J, Brogan P, Cantarini L, Frenkel J, Galeotti C, Gattorno M, Grateau G, Hofer M, Kone-Paut I, Kuemmerle-Deschner J, Lachmann H J, Simon A, Demirkaya E, Feldman B, Uziel Y*, Ozen S*
Ann Rheum 74: 635-641, 2015

 

Development of the Autoinflammatory Disease Damage Index (ADDI)
Ter Haar NM, Annink KV, Al-Mayouf SM, Amaryan G, Anton J, Barron KS, Benseler SM, Brogan PA, Cantarini L, Cattalini M, Cochino AV, De Benedetti F, Dedeoglu F, De Jesus AA, Della Casa Alberighi O, Demirkaya E, Dolezalova P, Durrant KL, Fabio G, Gallizzi R, Goldbach-Mansky R, Hachulla E, Hentgen V, Herlin T, Hofer M, Hoffman HM, Insalaco A, Jansson AF, Kallinich T, Koné-Paut I, Kozlova A, Kuemmerle-Deschner JB, Lachmann HJ, Laxer RM, Martini A, Nielsen S, Nikishina I, Ombrello AK, Ozen S, Papadopoulou-Alataki E, Quartier P, Rigante D, Russo R, Simon A, Trachana M, Uziel Y, Ravelli A, Gattorno M, Frenkel J.
Ann Rheum Dis; 76: 821-830, 2017


 
An international delphi survey for the definition of the variables for the development of new classification criteria for periodic fever aphtous stomatitis pharingitis cervical adenitis (PFAPA).
Vanoni F, Federici S, Antón J, Barron KS, Brogan P, De Benedetti F, Dedeoglu F, Demirkaya E, Hentgen V, Kallinich T, Laxer R, Russo R, Toplak N, Uziel Y, Martini A, Ruperto N, Gattorno M, Hofer M; for Eurofever and the Paediatric Rheumatology International Trials Organisation (PRINTO).
Pediatr Rheumatol 2018;16(1):27. doi: 10.1186/s12969-018-0246-9.

 

In silico validation of the Autoinflammatory Disease Damage Index.
Ter Haar NM1,2, van Delft ALJ3, Annink KV3, van Stel H3, Al-Mayouf SM4, Amaryan G5, Anton J6, Barron KS7, Benseler S8, Brogan PA9, Cantarini L10, Cattalini M11, Cochino AV12, de Benedetti F13, Dedeoglu F14, de Jesus AA15, Demirkaya E16, Dolezalova P17, Durrant KL18, Fabio G19, Gallizzi R20, Goldbach-Mansky R15, Hachulla E21, Hentgen V22, Herlin T23, Hofer M24,25, Hoffman HM26, Insalaco A27, Jansson AF28,29, Kallinich T28, Kone-Paut I30, Kozlova A31, Kuemmerle-Deschner JB32, Lachmann HJ33, Laxer RM34, Martini A35, Nielsen S36, Nikishina I37, Ombrello AK38, Özen S39, Papadopoulou-Alataki E40, Quartier P41, Rigante D42, Russo R43, Simon A44, Trachana M45, Uziel Y46, Ravelli A47, Schulert G48,49, Gattorno M47, Frenkel J3.
Ann Rheum Dis.  2018; 77:1599-1605:

 

Educational initiatives and training for paediatric rheumatology in Europe.
Foster HE, Vojinovic J, Constantin T, Martini A, Dolezalova P, Uziel Y, Smith EMD, , Lamot L, , Wouters C, Avcin, Wulffraat N.
Pediatr Rheumatol 2018 ,7;16(1):77. doi: 10.1186/s12969-018-0289-y.

 

"EUROPEAN CONSENSUS-BASED RECOMMENDATIONS FOR THE DIAGNOSIS AND TREATMENT OF KAWASAKI DISEASE – THE SHARE INITIATIVE"
De Graeff, Nienke; Groot, Noortje; Ozen, Seza; Eleftheriou, Despina; Avcin, Tadej; Bader-Meunier, Brigitte; Doležalová, Pavla; Feldman, Brian; Koné-Paut, Isabelle; Lahdenne, Pekka; McCann, Liza; Pilkington, Clarissa; Ravelli, Angelo; van Royen-Kerkhof, Annet; Uziel, Yosef; Vastert, Sebastiaan; Wulffraat, N; Kamphuis, Sylvia; Brogan, Paul A; Beresford, Michae
Rheumatology  (Oxford). 2019, 58:672--682

 

European consensus-based recommendations for the diagnosis and treatment of rare paediatric vasculitides - the SHARE initiative.
de Graeff N, Groot N, Brogan P, Ozen S, Avcin T, Bader-Meunier B, Dolezalova P, Feldman BM, Kone-Paut I, Lahdenne P, Marks SD, McCann L, Pilkington C, Ravelli A, van Royen A, Uziel Y, Vastert B, Wulffraat N, Kamphuis S, Beresford MW.
Rheumatology (Oxford). 2019, 58:656-671

European consensus-based recommendations for diagnosis and treatment of immunoglobulin A vasculitis-the SHARE initiative.
Ozen S, Marks SD, Brogan P, Groot N, de Graeff N, Avcin T, Bader-Meunier B, Dolezalova P, Feldman BM, Kone-Paut I, Lahdenne P, McCann L, Pilkington C, Ravelli A, van Royen A, Uziel Y, Vastert B, Wulffraat N, Kamphuis S, Beresford MW
Rheumatology (Oxford). 2019 Mar 16. pii: kez041. doi:. [Epub ahead of print].

Establishing an Updated Core Domain Set for Studies in Juvenile Idiopathic Arthritis: A Report from the OMERACT 2018 JIA Workshop
Esi M. Morgan, Jane E. Munro, Jennifer Horonjeff, Ben Horgan, Beverley Shea, Brian M. Feldman, Hayyah Clairman, Clifton O. Bingham III, Susan Thornhill, Vibeke Strand, Alessandra Alongi, Silvia Magni-Manzoni, Marion A.J. van Rossum, Richard Vesely, Jelena Vojinovic, Hermine I. Brunner, Julia G. Harris, Daniel B. Horton, Daniel J. Lovell, Melissa Mannion, Homaira Rahimi, Angelo Ravelli, Sarah Ringold, Nicolino Ruperto, M. Suzanne Schrandt, Susan Shenoi, Natalie J. Shiff, Karine Toupin-April, Nikolay Tzaribachev, Pamela Weiss and Alessandro Consolaro
The Journal of Rheumatology February 2019, jrheum.181088; DOI: https://doi.org/10.3899/jrheum.181088


2019 American College of Rheumatology/Arthritis Foundation Guideline for the Screening, Monitoring, and Treatment of Juvenile Idiopathic Arthritis–Associated Uveitis
Sheila T. Angeles-Han,1 Sarah Ringold,2 Timothy Beukelman,3 Daniel Lovell,1 Carlos A. Cuello,4 Mara L. Becker,5 Robert A. Colbert,6 Brian M. Feldman,7 Gary N. Holland,8 Polly J. Ferguson,9 Harry Gewanter,10 Jaime Guzman,11 Jennifer Horonjeff,12 Peter A. Nigrovic,13 Michael J. Ombrello,6 Murray H. Passo,14 Matthew L. Stoll,3 C. Egla Rabinovich,15 H. Nida Sen,16 Rayfel Schneider,7 Olha Halyabar,17 Kimberly Hays,14 Amit Aakash Shah,18 Nancy Sullivan,19 Ann Marie Szymanski,6 Marat Turgunbaev,18 Amy Turner,18 and James Reston19

 

2019 American College of Rheumatology/Arthritis Foundation Guideline for the Treatment of Juvenile Idiopathic Arthritis: Therapeutic Approaches for Non-Systemic Polyarthritis, Sacroiliitis, and Enthesitis
Sarah Ringold,1 Sheila T. Angeles-Han,2 Timothy Beukelman,3 Daniel Lovell,2 Carlos A. Cuello,4 Mara L. Becker,5 Robert A. Colbert,6 Brian M. Feldman,7 Polly J. Ferguson,8 Harry Gewanter,9 Jaime Guzman,10 Jennifer Horonjeff,11 Peter A. Nigrovic,12 Michael J. Ombrello,6 Murray H. Passo,13 Matthew L. Stoll,3 C. Egla Rabinovich,14 Rayfel Schneider,7 Olha Halyabar,15 Kimberly Hays,13 Amit Aakash Shah,16 Nancy Sullivan,17 Ann Marie Szymanski,6 Marat Turgunbaev,16 Amy Turner,16 and James Reston17

 

Classification criteria for autoinflammatory recurrent fevers
Marco Gattorno, 1 Michael Hofer,2,3 Silvia Federici,4 Federica Vanoni,5 Francesca Bovis,6 Ivona Aksentijevich,7 Jordi Anton,8 Juan Ignacio Arostegui,9 Karyl Barron,10 Eldad Ben-Cherit,11 Paul A Brogan,12 Luca Cantarini,13 Isabella Ceccherini,14 Fabrizio De Benedetti,15 Fatma Dedeoglu,16 Erkan Demirkaya,17 Joost Frenkel,18 Raphaela Goldbach-Mansky,19 Ahmet Gul,20 Veronique Hentgen,21 Hal Hoffman,22 Tilmann Kallinich,23 Isabelle Kone-Paut,24 Jasmin Kuemmerle-Deschner,25 Helen J Lachmann,26 Ronald M Laxer,27 Avi Livneh,28 Laura Obici,29 Seza Ozen,30 Dorota Rowczenio,26 Ricardo Russo,31 Yael Shinar,32 Anna Simon,33 Nataša Toplak,34 Isabelle Touitou,35 Yosef Uziel,36,37 Marielle van Gijn,38 Dirk Foell,39 Claudia Garassino,40 Dan Kastner,10 Alberto Martini,40 Maria Pia Sormani,6,41 Nicolino Ruperto, 42 for the Eurofever Registry and the Paediatric Rheumatology International Trials Organisation (PRINTO)

 

Treating juvenile idiopathic arthritis to target: recommendations of an international task force
Angelo Ravelli,1 Alessandro Consolaro,1 Gerd Horneff,2,3 Ronald M Laxer,4 Daniel J Lovell,5 Nico M Wulffraat,6 Jonathan D Akikusa,7 Sulaiman M Al-Mayouf,8 Jordi Antón,9 Tadej Avcin,10 Roberta A Berard,11 Michael W Beresford,12 Ruben Burgos-Vargas,13 Rolando Cimaz,14 Fabrizio De Benedetti,15 Erkan Demirkaya,11 Dirk Foell,16 Yasuhiko Itoh,17 Pekka Lahdenne,18 Esi M Morgan,5 Pierre Quartier,19 Nicolino Ruperto,20 Ricardo Russo,21 Claudia Saad-Magalhães,22 Sujata Sawhney,23 Christiaan Scott,24 Susan Shenoi,25 Joost F Swart,6 Yosef Uziel,26,27 Sebastiaan J Vastert,6 Josef S Smolen28

 

Consensus-based recommendations for the management of uveitis associated with juvenile idiopathic arthritis: the SHARE initiative
Tamas Constantin,1 Ivan Foeldvari,2 Jordi Anton,3 Joke de Boer,4 Severine Czitrom -Guillaume,5 Clive Edelsten,6 Raz Gepstein,7 Arnd Heiligenhaus,8,9 Clarissa A Pilkington,10 Gabriele Simonini,11 Yosef Uziel,12 Sebastian J Vastert,13 Nico M Wulffraat,13 Anne-Mieke Haasnoot,4 Karoline Walscheid,8 Annamária Pálinkás,1 Reshma Pattani,6 Zoltán Györgyi,1 Richárd Kozma,1 Victor Boom,14 Andrea Ponyi,1 Angelo Ravelli,15 Athimalaipet V Ramanan16

 

Recommendations for collaborative paediatric research including biobanking in Europe: a Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) initiative
Jasmin B Kuemmerle-Deschner,1 Sandra Hansmann,1 Nico M Wulffraat,2 Sebastiaan J Vastert,3 Kristien Hens,4 Jordi Anton,5 Tadej Avcin,6 Alberto Martini,7 Isabelle Koné-Paut,8 Yosef Uziel,9,10 Angelo Ravelli,7 Carine Wouters,11 David Shaw,12,13 Seza Özen,14 Andreas Eikelberg,1 Berent J Prakken,15 Nicolino Ruperto,7 Gerd Horneff,16 Tamas Constantin,17 Michael W Beresford,18 Marijn Sikken,19 Helen E Foster,20 Iris Haug,1 Sabrina Schuller,1 Christine Jägle,1 Susanne M Benseler1,21

 

European evidence-based recommendations for the diagnosis and treatment of childhood-onset lupus nephritis: the SHARE initiative
Noortje Groot,1,2 Nienke de Graeff,1 Stephen D Marks,3 Paul Brogan,3 Tadej Avcin,4 Brigitte Bader-Meunier,5 Pavla Dolezalova,6 Brian M Feldman,7 Isabelle Kone-Paut,8 Pekka Lahdenne,9 Liza McCann,10 Seza Özen,11 Clarissa A Pilkington,3 Angelo Ravelli,12 Annet van Royen-Kerkhof,1 Yosef Uziel,13 Bas J Vastert,1 Nico M Wulffraat,1 Michael W Beresford,10,14 Sylvia Kamphuis2

 

September 2017 - Recommendations for lupus nephritis

May 2017 - Recommendations for Lupus

March 2017 - Recommendations for antiphospholipid syndrome

August 2016 - Recommendations for dermatomyositis

June 2015 - Recommendations for autoinflammatory diseases

August 2018 - Taxonomy and definition of AIDs, a Delphi study

August 2018 - JAMLess: consensus recommendations from the Cradle of Humankind

July 2018 - Methotrexate in JIA: recommendations from the MARAJIA expert consensus meeting

April 2018 - Recommendations for treating JIA to target

March 2018 - Recommmendations for the management of uveitis associated with JIA

October 2017 - Recommendations for collaborative paediatric research

October 2017 - Recommendation for juvenile inflammatory myopathies

March 2017 - Classification criteria for MAS

November 2016 - Recommendations for transitional care

December 2009 - Classification criteria for vasculitis_Part I

December 2009 - Classification criteria for vasculitis_Part II

December 2005 - Classification criteria for vasculitides

 

INSTRUMENTS & TOOLS

Childhood health assessment questionnaire

Systemic Lupus Erythematosus Disease Activity Index

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