Wednesday 23 September 2020
17:15–18:15 (CET)


Sobi Satellite Symposium Agenda

How do I manage systemic juvenile idiopathic arthritis (SJIA)?

Your questions answered with case-based discussions

The symposium will explore two different approaches to the management of SJIA (escalation versus treat to target) within the context of different healthcare systems and resources.

The symposium Chair, Prof. Ramanan, and the speaker panel, will also share their expertise in discussing challenging case studies during a LIVE interactive question and answer session.







Athimalaipet V. Ramanan (Chair)


How do I manage SJIA? A conventional approach: Escalating steps

Seza Özen


How do I manage SJIA? An innovative approach: Treat to target

Nico Wulffraat


LIVE - How do we manage the difficult-to-treat cases?
Case-based panel discussion



Summary and conclusions

Athimalaipet V. Ramanan

Speaker details

Prof. Athimalaipet V Ramanan (Chair)
Bristol Royal Hospital for Children
Bristol, UK

Prof. Seza Özen
Hacettepe University Hospital
Ankara, Turkey

Prof. Nico Wulffraat
University Medical Center Utrecht
Utrecht, Netherlands

Thursday 24 September 2020
13:00–14:00 (CET)


Novartis Satellite Symposium Agenda

Unmet Needs in Familial Mediterranean Fever (FMF): Real-Life Data, the Patient Perspective, and the Role of Anti–IL-1 Therapy

Learning Objectives

  • Characterise the incidence and impact of colchicine resistance among patients with FMF

  • Understand disease burden from the perspective of the patient

  • Analyse the long-term clinical and quality-of-life (QoL) data for anti–IL-1 therapy in colchicine-resistant FMF


13:00 – 13:05 Introduction (Chair: Fabrizio de Benedetti, MD, PhD)

13:05 – 13:20 Resistance to Colchicine in a Multicentric FMF National Cohort (Marco Gattorno, MD)

  • Clinical outcomes in an Italian cohort of paediatric and adult patients with FMF (data from the EUROFEVER registry)

  • Incidence of colchicine resistance and tolerability as defined by a recent consensus statement

  • Quality of life and compliance

13:20 – 13:35 Exploring Patient Perspectives in FMF (Saskya Angevare, Patient Advocate)

  • The symptom burden of FMF

  • Impact of FMF on patients’ quality of life

  • Disease control: patient perception vs physician perception

13:35 – 13:50 The Impact of Anti–IL-1 Therapy in Colchicine-Resistant FMF (Helen Lachmann, MA, MB BChir, MD)

  • Long-term efficacy and safety of anti–IL-1β therapy in colchicine-resistant FMF

  • Impact of anti–IL-1 therapy on QoL

13:50 – 14:00 Conclusion, Q&A (Fabrizio de Benedetti, MD, PhD; all faculty)

Speakers names and complete details

  • Fabrizio de Benedetti, MD, PhD (Chair), Ospedale Pediatrico Bambino Gesù, Rome, Italy
  • Marco Gattorno, MD, Center for Autoinflammatory Diseases and Immunodeficiencies, G. Gaslini Research Institute, Genoa, Italy
  • Saskya Angevare, Patient Advocate, Autoinflammatory Alliance, KAISZ, ENCA, Amersfoort, Netherlands
  • Helen J. Lachmann, MA, MB BChir, MD, University College London, Royal Free Hospital London NHS Foundation Trust, London, United Kingdom

Thursday 24 September 2020


Pfizer Satellite Symposium Agenda

Patient Unmet Need in Polyarticular-Course Juvenile Idiopathic Arthritis: Current Challenges and Future Perspectives


  • Explore the disease state of polyarticular-course juvenile idiopathic arthritis (pcJIA) and the impact of clinical features, diagnosis and disease activity on patients and caregivers
  • Discuss the importance of both the patient perspective and the unmet need for optimising the management of pcJIA
  • Consider the potential role of therapeutic options currently in development, including Janus kinase (JAK) inhibitors, in the management of pcJIA
Time Session Presenter
18:30 Welcome and Introduction (5 min) Nicola Ruperto

Understanding Polyarticular Course Juvenile Idiopathic Arthritis and Its Impact: Treat-to-target in Clinical Practice (15 min)

Alessandro Consolaro

Unmet Need in Polyarticular-Course Juvenile Idiopathic Arthritis: The Patient Perspective (10 min)

Flora McErlane

Looking to the Future: What’s on the Horizon for Patients with Polyarticular-Course Juvenile Idiopathic Arthritis? (10 min)

Nicola Ruperto

Faculty Q&A and Discussion (15 min)

All faculty
19:25 Summary and Close (5 min) Nicola Ruperto

Faculty Details:

  • Nicola Ruperto, MD, MPH, IRCCS Istituto Giannina Gaslini, Genoa, Italy
  • Alessandro Consolaro, MD, PhD., IRCCS Istituto Giannina Gaslini, University of Genoa, Genoa, Italy
  • Flora McErlane, MBChB, MSc, MRCPCH, Royal Victoria Infirmary, Newcastle upon Tyne, UK

Friday 25 September 2020
16:00–17:00 (CET)


Sobi Satellite Symposium Agenda

MAS, CSS, CRS, and Hyperinflammation: What’s in a Name?

The symposium will:

  • Explore the family of conditions under the umbrella term of ‘cytokine storm syndrome’ (CSS), including hyperinflammation, cytokine release syndrome (CRS), and macrophage activation syndrome (MAS)

  • Highlight the clinical and laboratory manifestations of several example conditions

  • Understand the cytokine dynamics and the clinical evidence supporting translation into potential future targeted therapeutic approaches

Please join the expert panel in a live interactive session to discuss key questions raised during the symposium






Welcome and introduction

Paul Brogan (Chair)



Paul Brogan


Nuances in presentations: clinical and laboratory

Alexei Grom


Understanding the cytokine dynamics


Michael Jordan


Targeted approaches: available data

Fabrizio De Benedetti


LIVE interactive Q&A



Summary and close


Speaker details

Prof. Paul Brogan (Chair)
UCL Institute of Child Health, and Great Ormond Street Hospital NHS Foundation Trust
London, UK

Prof. Alexei Grom
Division of Rheumatology
Cincinnati Children’s Hospital
Cincinnati, OH, USA

Prof. Michael Jordan
Division of Immunobiology and Division of Bone Marrow Transplantation and Immune Deficiency
Cincinnati Children’s Hospital
Cincinnati, OH, USA

Prof. Fabrizio De Benedetti
Department of Rheumatology
IRCCS Ospedale Pediatrico Bambino Gesù
Rome, Italy