Weblinks

Here below you will find a collection of links recommended by PReS, on the topics Education, Diseases, Patients and Parents Organizations, Journals and Professional Organizations.

If you have other recommendations or find any broken links, please send an e-mail to presmembership@mci-group.com .

 

Research:

SHARE

The "Single Hub and Access point for paediatric Rheumatology in Europe"(SHARE) is a European project whose main objective is to improve the quality of care of patients suffering from Paediatric Rheumatic Diseases.


PRINTO

The Paediatric Rheumatology INternational Trials Organisation (PRINTO) is a not for profit, non governmental, international research network founded by Alberto Martini and Nicolino Ruperto in 1996, and initially included 14 European countries (now more than 50 and more than 350 centres worldwide), with the goal to foster, facilitate and co-ordinate the development, conduct, analysis, and reporting of multi-centres, international clinical trials and/or outcome standardisation studies in children with paediatric rheumatic diseases (PRD).

 

Education:

UNION EUROPÉENNE DES MÉDECINS SPÉCIALISTES – U.E.M.S.
EUROPEAN UNION OF MEDICAL SPECIALISTS

Confédération Européenne des Spécialistes en Pédiatrie – C.E.S.P
Confederation of European Specialists in Paediatrics
www.uems.be/paediat.htm

Touch Briefings

'European Musculoskeletal Review and European Paediatrics' journals

 

Diseases:

The NOMID/CINCA Website

Hyper-IgD and periodic fever syndrome
http://hids.net/

Maladie de Behçet
www.behcet.asso.fr/francais/recherc.htm

Juvenile systemic scleroderma
www.juvenile-scleroderma.com

The Rheumatoid Arthritis Support Network (RASN)
www.rheumatoidarthritis.org

 

Patients and Parents Organizations:

Printo/PRES parents web site
www.printo.it/pediatric-rheumatology/

Kourir
www.kourir.org/indexa.htm

 

Journals:

Annals of Paediatric Rheumatology
www.aprjournal.org

Arthritis and Rheumatism
www3.interscience.wiley.com/cgi-bin/jtoc?ID=76509746

Arthritis Care and Research
www3.interscience.wiley.com/cgi-bin/jtoc?ID=77005015

Clinical and Exprimental Rheumatology
www.clinexprheumatol.org/

Clinical Rheumatology
link.springer.de/link/service/journals/10067/

Current Opinion in Rheumatology
www.co-rheumatology.com/

Journal of Autoimmunity
www.idealibrary.com/cgi-bin/links/toc/au

Lupus
www.arnoldpublishers.com/journals/journpages/09612033.htm

Journal of Rheumatology
www.jrheum.com/

Rheumatology
rheumatology.oupjournals.org 

Scandinavian Journal of Rheumatology
www.ingenta.com/journals/browse/scup/469

Zeitschrift für Rheumatologie
link.springer.de/link/service/journals/00393/

 

Professional organizations:

International League of Rheumatology Associations
www.ilar.org

European League Against Rheumatism
www.eular.org

APLAR: The Asia Pacific League of Associations for Rheumatology:
www.aplar2006.com

AFLAR: The African League against Rheumatism:
www.ilar.org

PANLAR: Pan American League of Associations for Rheumatology:
www.panlar.org

The American College of Rheumatology (ACR)
www.rheumatology.org

British Society for Rheumatology
www.rheumatology.org.uk

British Society for Paediatric and Adolescent Rheumatology
www.bspar.org.uk

British Health Professionals in Rheumatology
www.rheumatology.org.uk/BHPR/index.html

German Society for Paediatric Rheumatology
http://www.rheumanet.org/haus1152.html

http://www.agkjr.de/AGKJRContent/m1/k1/index.aspxx

Spanish Society for Rheumatology (in Spanish)
www.ser.es/

Swedish Society for Rheumatology (in Swedish)
www.swedemedsoc.se/sektioner/srf

Österreichische Gesellschaft für Rheumatologie
www.rheuma2000.at

Societe Francaise de Rhumatologie (in French)
www.sf-rhumato.org

Greek Rheumatology Society
www.ere.gr/

Irish Society for Rheumatology
www.isr.ie/

Società Italiana di Reumatologia
www.reumatologia.it/

Dutch Rheumatology Association (Nederlandse Vereniging voor Reumatologie, NVR (in Dutch)
www.nvr.nl/

Sociedad Portuguesa de Reumatologia
www.spreumatologia.pt/

International Society of Autoinflammatory diseases
fmf.igh.cnrs.fr/ISSAID/

FAVOR: FMF Arthritis Vasculitis and Orphan disease Research in Paediatric Rheumatology
www.favor.org.tr